I had an email from a teacher who was curious about the death of Natalie
Giorgio (the 13 year old who died after eating a rice krispie treat
made with peanut butter).
Natalie had a known peanut allergy.
She took a bite of the treat and immediately suspected she shouldn't
have and brought it to her mom. Her mom agreed that there was peanut
butter in the treat.
They waited to see what would happen -
was that the fatal mistake??? Some are saying that is the reason why she died:
Delaying administration of the epinephrine.
Here is her question:
This
is so tragic, I feel for the family so much. Melissa, did this happen
because the epi's were applied too late? That they can be ineffective
if not administered immediately?? I am curious as to why they may have
waited if they knew there was peanut butter. Even IF there was any
doubt one would give the epi's anyway wouldn't one? Do you have any
ideas?? I'm just trying to understand this situation.
Jane
Here was my response to Jane:
My
allergist has told me that most of the deaths due to allergies occur
with people who had a known allergy and failed to administer epi or
delayed administration. There was another death recently where the boy
also received the dose later and died. In the event that a known
allergen is ingested they recommend IMMEDIATE ADMINISTRATION OF EPI.
My mom is anaphylactic to bee stings...
Her
and I were discussing the tragedy of this case and the fact that they
gave 3 epi-pens. My mother mentioned that when she was in hospital the
doctors told her it would be dangerous to give her any more
epinephrine. Could 3 doses have been too much?
So many questions..
- Why did they wait?
- It
is said she started to show signs of a reaction 20 minutes after
ingesting the treat. Did they administer the epipen immediately upon
these symptoms or did they wait longer?
- Could the epi-pens have caused her death? Were 3 doses too much?
What
do you think? What would you do? If you or your child ingested a
known allergen do you think you would delay administering the epi-pen or
would you give it right away? Are you afraid to administer
epinephrine?
Are the "experts" on the same page??
One
of the things that I am noticing is that all of us are getting
different answers from the doctors. Some are being told to give
benadryl and epi. Some are told never to give benadryl for
anaphylaxis. Some are told to wait and see and others are told
administer immediately.
My advice?
Give epi immediately for known ingestion of a food allergen.
One more piece of advice if I may...
The
common thread I see in most of the allergy deaths is that people are
eating food that they have not prepared themselves. We have a rule for
our daughter that she is only allowed to eat food that I or her father
has prepared. Even still, we fear mislabeling on food ingredients and
undeclared allergens or the risk of cross-contamination. We all do
our best to keep our children safe.
Let's support each other, not JUDGE...
It
saddens me when I see the comments below articles such as the one of
Natalie's death where members of our allergy community criticize the
family for their actions and inactions. Really?!! Come on. In the
support group I host I advocate for non-judgement. Those parents were
doing the best they could for their daughter and they are now sharing
their story with the press to publicize this death to promote advocacy
and education or the public on the severity of these food allergies. I
send them my love and prayers.
My comments below the article:As an allergy mom I request the following accommodations from my child’s school that I think are reasonable and fair…
1. Supervision while eating.
Did you know that many schools in Peel region have one adult supervising 4-6 classrooms over the lunch hour. This means children are left unsupervised for the majority of the lunch hour. As a teacher with the board, I personally witnessed children vomiting, standing on tables and running around when teachers were not present. It is not safe for any young child not just those with life threatening food allergies to be unsupervised while eating.2. Proper cleaning.
I requested that the desks and chairs be properly wiped and floors swept after the children eat -they eat 3 times per day in the classroom -lunch and 2 snack times. I was told that it is NOT the teacher’s job nor the custodians to clean up after the children eat and that if I want this done i would have to come in myself and do it. Which I did for the beginning of the school year. I quickly realized this was not reasonable or reliable as I had to work or could fall ill and that someone in the school needed to be responsible for this. The decision made was to have the children clean up after themselves with wipes. I am not happy with this decision but it is better than nothing. I have seen cheese spread into the carpets following a food fight in the class room (back to the lack of supervision) and my daughter has to sit on that carpet during circle time with her life-threatening dairy allergy.3. Safe arts and craft materials
-allergens can be hidden in arts and craft materials and sometimes recycled food containers are used. I asked to be notified so that i can read the ingredients and ensure craft materials are safe.4. Handwashing
-I requested that children wash their hands after eating to help prevent the risk of cross-contamination. This is very difficult for the school to do however as there are just so many children and some classrooms do not have sinks. This year the children are going to use wipes to wipe their hands. I hope this will be effective.5. Non-food treats or Safe treats.
– I advocate for non-food treats -pencilgrams (where children can purchase a pencil and write a note to be sent to a friend -good fundraiser), books donated in honour of birthdays etc. This promotes literacy too! On the special occasions and holidays where the school would like a food treat given to children I request:a) An opportunity to recommend a safe treat for all children in the school that is a food item that comes packaged with ingredient label
b) If a) is not possible, the opportunity to be notified in advance so that I can send a comparable safe treat for my allergic child and other allergic children possibly
I do not understand why schools want to give children homemade treats anyway? There is no quality control, no ingredients listed and you have no idea what the safety or contents are of that treat! I also feel that children have access to a lot of treats and most families are trying to encourage healthy choices. Let’s have celebrations with fruit! When I was teaching, I would read the story “Stone Soup” to the children and we would have vegetable soup to celebrate.
Everyone loves treats and I’m not saying there isn’t a time and a place for them. I also ask parents of non-allergic children to try and imagine one of 2 scenarios:
1. Your child being the only one who doesn’t get the treat. The whole point of treats is to bring happiness and smiles to the children. A 6 year old child being the only one not getting a cupcake is just sad
2. Your snack causing the death of another child. We saw the recent allergy death of a 13 year old girl (Natalie Giorgio) this summer from eating a bite of a rice krispie square. My heart breaks for her family and for the family that made the treats. It is heartbreaking that food that is perfectly safe and enjoyable for some can kill others. The rate of allergies has risen from 1-2 % of our population in the early part of this decade to 7.5%!!! These allergies are becoming more and more prevalant! I ask you to imagine if it was your child who all of a sudden was deathly allergic to milk. It is terrifying to send your child to school with yogurt, milk, pizza with cheese and their life-threatening allergen everywhere. Try to put yourself in that mom’s shoes. Thank you!!!!!
What do you think?
What do you request from your child's school as far as accommodations to keep your child safe? In the United States there are 504 plans for these kids which recognizes their allergies as disabilities. I have been trying to advocate for these here in Canada but without success. The schools and Ministry are not recognizing Anaphylaxis as a disability. What could be more disabling than the risk of death caused by food that is all around you every day?! For my child with a life-threatening dairy allergy, the milk, pizza, cheese, and yogurt that her classmates bring to school is a poison. It is terrifying for her and us to imagine what would happen if she accidentally ingested milk or had a reaction from touching contaminated supplies or furniture.Reminders:
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August 26th: Severe Allergy & Anaphylaxis Support Group Meeting in Oakville, ON.